The Equals Project began in 2023 when several of the mainstream schools I was working with had pupils for the first time who were working with children at early developmental levels beyond early years. The schools were keen to meet the children’s needs but once they had moved out of EYFS it was proving hard to provide them with a curriculum which was appropriate.
Equals are a national organisation which have published several strands of curricula for pupils working enduringly below National Curriculum levels. They are designed to support the education of children who have severe or profound learning disabilities and provide lateral learning opportunities rather than the traditional linear view of progress, with a focus on practical skills which will support lifelong development. I had previously used the semi-formal strand when working within a specialist school and so began exploring how this could be employed for pupils in a mainstream setting. Initially I ran a pilot project with three schools. One had just one pupil requiring this approach, one had several children from Key Stages 1 and 2 who were based in their age-related classes, and the third school had a number of pupils who often worked as a group led by TA’s.
In June 2024 Reachout ASC held their first conference in conjunction with Equals, with their Director of Developments, Peter Imray, as keynote speaker. Over 100 delegates attended, and the semi formal and informal curriculum began to be used in more schools and SEND units attached to mainstream schools following on from this. Cluster groups around Lancashire started to meet to support schools as they explore and develop alternative curricula in their unique settings.
As numbers of children with severe learning disabilities (with or without autism) placed in mainstream continues to grow, this project aims to give practical support and confidence to school staff wherever it is needed. A collaboration with Strive SEND, Waite Psychology and Reachout ASC led to 3 full days of training with Peter Imray last September. Regular training opportunities for staff are now available in conjunction with The Willows Sensory Service which give practical strategies and a next steps course gives opportunities to explore and personalise approaches to pupils.
A second conference on 28th March included speakers from mainstream schools in both London and Preston who have set up groups of children following the semi formal and informal curriculum. It also offered workshops looking at planning, Ofsted, using Evidence for Learning for assessment and other subjects. This time 180 delegates attended, demonstrating a high level of interest.
The focus of the curriculum we work on is communication, independence, play and developing early learning. It includes approaches such as intensive interaction, sensory play, attention groups and sensory stories. I have worked with schools using this for individuals based in
their age-related classes as well as where separate classes or units are formed. It can be applied flexibly according to need and can be combined with more formal lessons for children who can access a partial curriculum within the mainstream school.
Equals require individual schools to acquire membership which then gives them access to a wide range of free online training. The school can then join a cluster (connected to Strive SEND, Waite Psychology or Reachout ASC) who can share the Equals curriculum documents for free.
This is an exciting time as the project grows and schools report positive and sometimes dramatic changes in pupil engagement. Whilst this does not provide all the answers in often very difficult situations, it can provide a new way forward. Our teams are keen to help and support school staff wherever they are on the Equals journey.
Keep Calm and carry on – A crash course in combatting exam-xiety
When I was growing up, the slogan ‘keep calm and carry on’ was seen on every marketable item available, parodied and spoofed more times than ways I’ve shoehorned my special interests into conversation. I even remember having a Star Trek poster as a teen that replaced the iconic messaging with ‘live long and prosper’ instead, both helpful messages whatever you may be going through.
The famous slogan took off at an uncertain and scary time for many as a message of comfort, reassuring the people of wartime Britain, possibly your grandparents or great grandparents, that we all face challenges best when we are level-headed and have faith that we are doing the best we can— keeping calm and carrying on.
Anyone who has ever gone through a stressful period, which is everyone, will know that it is easier said than done, and autistic people know this better than most. Stress overloads our brains more easily, and a tendency to hyper fixate makes the stress worse.
We can all agree, the pressure to excel in our SATs and GCSEs is second to none. We want to make our parents and teachers happy, we equally fear a potential punishment or judgement from them as well. We may also have strong plans about what we want to do leaving primary school or high school, and would understandably feel awful if we do not secure the school, college, or apprenticeship, we had in mind.
It is a difficult time for almost everyone, and I am relieved I do not have to do it all again. I left high school 9 years ago, which means I have had a lot of time to reflect on these experiences and give you, the reader, the toolkit you need to deal with the exams and SATs period.
Mascots, are a fun way to ground yourself in the exam hall
I remember for our SATs, we were all allowed to bring in a small item that would be our good luck charm. They all sat on a little table at the front, cheering us on as we scribbled away. I brought in a small Buddha statue that lived on our kitchen windowsill at the time, but it could be anything, and it definitely can be related to your special interest.
Whether you believe in good luck or not, and whether schools allow you to do this now, having an item that brings you comfort has the power to get you through your exams. Autistic people naturally have an artillery of grounding strategies, they just don’t look like that to the average person.
Whether it is stimming or engaging big time with your passions, think of them like an item you can touch and sense and bring it with you into the exam. Anything that keeps you grounded, anything that reminds you of the good times before, at present, and ahead, is a thought worth savouring. Those warm feelings are your beacons of light in the exam hall storm.
Know when you’ve done everything you can
Fight the impulse to cram or study the day before. There will come a point where you will know you have done everything you can for your tests, exams, coursework, and you will know when this is when you’ve gone through all the subject matter of your exams. Before a big deadline, if you can, do something you enjoy, have a good dinner, and get some rest. This won’t be anything your parents, guardians, or teachers have not told you before, but sometimes all you need is a little reminder.
Most importantly, cramming is a form of self-punishment, it fundamentally is your brain saying, ‘you don’t do enough’, which is not true at all. No one learns well when they are perpetually stressed, and down the line this could have worse consequences. Not only could it lead to burnout, but it can also lead to you associating study with stress when you are at college, university or in an apprenticeship. Most jobs require you to learn something one way or another, and what a sad world it would be if the joy and fulfilment of learning was spoiled because of SATs and GCSEs?
Invigilators are there to help you
Most of my classmates feared invigilators, and there are many jokes online about how situations where students hoped they’d be more helpful than they hoped. At the end of the day, they are humans just like you and me. They don’t go into the cleaner’s cupboard after you’ve handed your papers in, and they’ve collected all the loaned-out rulers and compasses. Invigilators have gone through the process just like you and I have, even to this day I have the occasional throwback to my exams, and they are highly empathetic to that. If you are feeling uneasy and need some fresh air, they can do that. If you’ve run out of water and your mouth is getting dry, they have you covered. There is always the chance that you may be catching someone on a bad day, but ultimately, they are there to help you. Don’t be afraid to ask for what you need: their job is to help you if they can— ask and ye shall receive.
Grades only tell so much
No matter what grades you get, nothing about you will have changed. You will be the same person when you leave the exam hall as you entered it. Grades are not a value of self-worth, and your examiners have no idea of the amazing individual that you are, all they see is a candidate’s answers and maybe about an hour’s worth of work. One hour of your life does not and never will define you.
If you do not get the grades you need to get onto the next step, there is always another way to reach your goals. Have a good chat about your goals with your parents, friends, and teachers, and see what you can find out about other plans. Having another plan in mind will help put your mind at ease about failing. In reality, exams such as SATs and GCSEs are a tool to get onto your next step to make your dreams come true, not a barometer on your worth as a human being.
No matter what stage of your life you may be in, keeping calm and carrying on is the way to go. Though it is never easy, knowing that you are doing your best to study and also to enjoy yourself do not go against each other, but actually work hand in hand to make your life more fulfilling and to help you tackle your exams head on.
https://reachoutasc.com/wp-content/uploads/2024/12/Josh-and-friends.jpg1248936Mhttps://reachoutasc.com/wp-content/uploads/2022/08/Logo-purple-tagline-300x97.jpgM2025-03-20 14:57:532025-03-21 10:44:04Keep Calm and Carry On – a crash course in combatting exam-xiety
It amazes me to think that it has been 8 years since I left high school and 13 years since my first day. I can’t help but think about how different of a time high school was for me, not just now, but when I was about to start back as a 10-year-old. Despite many efforts to prepare me for high school, there were still a lot of struggles that I experienced, especially earlier on in my high school life.
Here, I will be sharing how I would have done things differently as well as what I would have done the same.
Normalise that big jump
Big life events always come sooner than you think. When I started year 6, choosing my high school seemed irrelevant, it felt like years away. Of course, as time drew nearer, I was still surprised that high school started at the time it did. That’s not to say no preparation was done, but it didn’t quite hit the mark.
Although the transition from year 7 to 8 was equally as significant, as was the massive leap from that to preparing for my GCSEs, high school is the first time for many that a shift in academic lifestyle takes place. The commute is very different, a lot of pupils will likely be travelling a much farther distance than they were for primary school. Friends and social groups are torn apart when high schools are fighting for pupils and pupils are fighting for spaces. Routine is different, the high schools are much bigger, there are more margins for error, and teachers and parents will often play up the changes in a way that makes the change scarier than it actually is. What works for me as an autistic person is normalising the change as much as possible, as well as focusing on what will be staying the same as this happens. At the end of the day, everyone will be there to alleviate the worst parts of this transition, and autistic people are capable of making those changes, with the right support. Every child feels like the next step beyond them when it isn’t, and every child needs to be made aware of that change is possible. Lend an ear to concerns, plan together, and do something fun.
From A to B, sort out your transportation needs
As an autistic person, even now, I recognise one dry run is not enough to feel confident enough to make my way to and from school on the bus. When I applied for my most recent job, I made at least 2 or 3 journeys just to make sure I was there on time for the interview. For me, I found that no matter what mode of transport you are taking, that the one practice attempt at getting there was never sufficient. Every morning journey is going to be slightly different, and being sensitive to change, it has always been beneficial for me to get the feel of a route and plan ahead if anything was to change drastically. It was all about learning the mean average route. Of course, you can pick it up on the way, but there is the stress of getting it all horrifically wrong. My dad had to take me on the first day after missing the bus and arriving an hour late. Of course, this meant that I missed an hour of introductions and breaking the ice as well. There is no shame if it takes you longer than usual to get used to certain routes and so on. If you can, get a lift or find a friend who you can shadow if you are going to the same school (or an older sibling or cousin). I was the oldest, so I missed out on that. Practice makes something more predictable.
Ask for the adjustments you need and find systems that help
I was always forgetting things at school, and although there was the option of having a locker, I knew that I would forget the key when I needed it most. One of the most helpful things my first school did for me was a box that I could access containing stationery, spare ties, exercise books, and miscellaneous items that I needed at school. If your child would find an arrangement like this useful, then talk to the SENCO of your school. I avoided many detentions this way, and hopefully your child would too.
It’s worth having a sit down and looking at what helps others and seeing ways in which this could help you as well.
Be extra (ordinary/curricular)
Whether it was primary school, high school, college, and even university, balancing extracurriculars were always a difficulty. I would either take part in no clubs or societies or simply too many. In high school, this was something I received awards for, and I am glad I had the chance to do many, but with being prone to burnout, I would find myself in bed for days in half term just to recuperate. Alternatively, FOMO and regret set in. I found that 2/3 extracurriculars were a good balance for me, one I really set my heart on, and 2 others that I did not put as much energy into. Any more than that, depending on how these commitments clashed or didn’t clash with each other. Some autistic students can feel that clubs and extracurricular activities are not for them, or too scary to even try. But I would really recommend trying some. You just might find your friendship group there as you will be mixing with people who like the same things are you.
Find out what clubs are available from the schools that are being considered as well as clubs for children in the local area. See how they can fit the activity to your specific needs, anyone can do anything with the right accommodations after all.
Don’t be afraid to try things out that don’t sound great at first, or if it’s something your friend is doing and you’re not super into it. I have converted to many hobbies just because a friend was doing it, and I wanted to hang out with them. Even if you show up once, you have got out of your comfort zone, you will feel that much more confident in yourself.
Conclusion
Lots of things are happening at this point in your life. It can be overwhelming, the fear of slipping up is real. The way I reassure myself is by thinking about how many people make this transition every year and have done, and how they all made it out the other end. With the right preparation, it won’t be a matter of survival, but rather flourishing.
Links
Reachout ASC have developed our Social Detective packs, based on teaching autistic and other children about how we cooperate and understand each other, how we listen to one another and how we learn to read social information to make the best guesses about what is going on. For more information or to order a pack go to https://reachoutasc.com/resources/social-skills-pack/
https://reachoutasc.com/wp-content/uploads/2024/12/Josh-and-friends.jpg1248936Mhttps://reachoutasc.com/wp-content/uploads/2022/08/Logo-purple-tagline-300x97.jpgM2025-01-30 14:49:052025-02-06 12:11:41An Autistic Angle on Preparing Children for Secondary School
For me, an autistic person, at 24, I would say that I am in the golden age of friendships. Social occasions are more frequent than they are seldom. Parties, gatherings, catch-ups, and fulfilling conversations and events are not at all uncommon in my adult social life. If anything, I probably have a bit too much on. Considering that we are living through a ‘loneliness pandemic’ and having heard many people my age complain about unfulfilled social goals, the fact that I am at peak friendship is ostensibly exceptional and noteworthy.
Growing Up Autistic: A Different Reality
However, growing up autistic, this was not the case. A lot of effort and soul searching was needed to get to this point. I want to share with you my story of how I got here and investigate why I had so much trouble in the first place. I call it an investigation because I want to understand why no one wanted to be my friend when I was much, much younger. I don’t think I will ever fully know; my brain was not developed to the point where I could have gathered the evidence and come up with a conclusion.
The Absence of Friends
What I do remember is wanting friends and how that absence felt. What made it harder was a burning sense of avoidance. This often boiled into what felt at the time was anger. My working theory is that I was so overwhelmed and anxious about having friends, that it either became anger or was mistaken for the feeling of anger.
My Memory of Avoidance
I remember being invited to a birthday party by a boy in my class. I had no reason to dislike him whatsoever. In fact, I had every reason to like him. I also could have gone to Puddle Town Pirates had I allowed myself to. That day, when I got home from school, I angrily stamped on the invitation and cried.
Why did I do this? Do kids just do weird things? Or was there something more? The whole cliché of ‘knowing I was different’ rung true for me, but as a child, I was too busy feeling for metacognition. Despite wading through the muddy waters of childhood impressions, what I have remembered and how I have remembered it will hopefully make you consider autistic relationships in a way you have not before.
The First Friend
When it came to friends, I didn’t meaningfully have any until I was about eight. Here and there, my parents’ friends would have kids that I would interact with, and I was very close with my cousins as a baby. I made my first friend when I was making houses for the ants from twigs and leaves. Even though we both knew that ants had ant hills, not needing us to provide shelter, we spent the whole of lunch time watching the ants.
I remember the few words we exchanged that day:
“Do you have any friends?”
“No.”
“Me, neither… do you want to be friends?”
“Sure.”
I definitely see the humour and charming social obliviousness in asking someone if they have any friends now, but at the time, it really was how we connected. It was the thing we had in common, which I was taught was what friendships are built upon.
Learning to Embrace Differences
Perhaps if I had the ability to meet a younger version of myself, I would encourage them not to just focus on what is similar, as we are often told, but to be helped to find a way to embrace difference in everyone.
A Diverse Social Circle
These days, all of my friends are different, and none of them are the same. In fact, my main friend group is very diverse, and outside of that, the friends I have peripheral to my main sphere of influence are even more diverse. Knowing this skill earlier definitely would have helped me flourish.
Summing up this chapter of my life in one word would result in me painting the corridor walls of my old primary school with the letters **t r a g i c o m i c** in bright red. Autistic people are very much capable of appreciating the absurdity of their own behaviours, and this is empowering.
Sustaining Friendships
Year 4 was around the time I was able to sustain a friend for longer than a few weeks. I would often find myself fighting and arguing over things I don’t remember now—topics that would have seemed so big at the time but are unequivocally small in retrospect. Some of these friends were bad influences as well.
The Influence of “Chris”
One such example was a child I will call Chris, who taught me how to shoplift using sticks and stones from the very same part of the playground where I befriended my ant-friend. That ant-friend, incidentally, is someone I am friends with still to this day.
Autistic children are more than capable of navigating the world of friendships and relationships, given the right support. Not being plugged into the same socket as the rest of the appliances in the kitchen where friendships are made means that we are vulnerable to people who could take advantage of us. Additionally, it means that we think that people who are our friends aren’t our friends at all—and vice versa.
Trial and Error in Friendship
It felt like I had to learn all of these rules through a cruel, gruelling process of trial and error. My friendship with Chris was off and on again up until Year 5, which concluded with a swift kick in the nuts from my leg. The last time I saw him was when I was invited to his house for tea. We watched YouTube videos and French dubs of The Penguins of Madagascar TV show, which we thought sounded hilarious at the time—all the while eating spaghetti hoops on toast.
I remember leaving his house early, limping home with a sore tummy, clutching onto my gut as I struggled back to my street, writhing in pain.
Teachers and Friendship Rules
Teachers attempted to teach me the friendship rules, but they did so in a way that focused on the shameful and harrowing consequences of social faux pas. I speculate that this was how they were taught, knowing too many people who live in fear of losing perception points in a made-up game designed to make everyone feel bad.
Why Shame Doesn’t Work
Shame is not a conducive or sustainable way to teach anyone, and autistic Josh at age 8 simply rebelled against it. No one taught me how to discern fake friends from real ones, often leaving me confused as I could not read the signs for myself.
A Cruel System
We have enough information collectively as humanity; it is foolish to let anyone learn something so painfully through trial and error. Do we get children to learn every rule of mathematics from the basic principles ancient scholars had to find for themselves? When someone learns to drive, do we let them take the wheel and figure out what the gearstick and pedals do through experimentation?
If we did, fewer children would know Pythagoras’ theorem, and we would fear for our lives as we crossed the road.
Teaching the Tools for Socialising
Yet, when it comes to socialising, almost everyone assumes they can be thrown into the deep end and know how to react to every single niche case. We are also capable of socialising. What we need help with is calibrating that sensor that tells us how to discern what people really mean—and for people to double-empathise and meet us halfway.
The Strengths of Autistic People
For me, the worst injustice for autistic people is there being an untapped talent in every autistic person that would make them great friends:
– A strong sense of justice is great for loyalty and for sticking up for friends.
– Candidness can help facilitate important communication and hard discussions before it’s too late.
– Special interests make us interesting.
Beyond that, the way in which every person mixes the ingredients of their autistic traits, and their self is different, and it would be immensely beneficial if teachers and parents were to tap into our natural strengths as opposed to going against them.
Golden Time and Friendships
At golden time, I would often draw these people I thought were my friends, using paper from the recycled paper box. I would let my imagination run wild with us having superpowers and going on improbable adventures. I would storyboard it all out and conjure up my own comic strips.
I’m sure you can imagine, then, how it stung when I found out that friends were hanging out without me or had reasons to dislike me for reasons they kept secret from me. They would often break off into their own factions for what they called “private chats.”
Intensity and Friendships
From the surface, my behaviour may have come across as obsessive. Tragically, this was one of the things that got in the way of me having friends as a child. Feeling very intensely about a friendship was an obstacle, as this intensity would often scare people off, or I would be too much for people.
My Best Traits Were Seen as Unbearable
As a child, I was upset that my friends found my best traits unbearable. My unbound creativity and generosity were seen as overkill to many children—who you would imagine would like such things—but not if it came from an autistic child they didn’t see as one of their own.
A Teacher’s Unkind Advice
I defiantly kept those traits, as my sense of justice led me to believe that I should be accepted as I was (which is what should be taught). However, at school, I was taught by my Year 6 teacher that I would be laughed **at**, as opposed to laughed **with**, if I acted the way I was when I went to high school.
The Burden of Preventing Bullying
This has always irked me. It put the onus on me to prevent my own bullying when realistically this was the job of the teachers. Perhaps I could be generous and suggest that my teacher foresaw that my new high school would not act upon it, and that people are not kind; even then, I fully resent this sort of cynicism of school systems.
The Complexity of Social Interactions
Looking back, I now understand what it is like to be overwhelmed by someone else. Having seen it from both sides, I can understand why someone would want to avoid a very overwhelming person, but I also understand that it is manageable if you have the right communications toolkit.
Concluding Thoughts
As I near the end of this piece of writing, wishing I had more time and space to include more anecdotes and examples, I would ideally conclude with a list of best practices. Unfortunately, I am only an expert in myself (if I can even call myself one).
For those who have read to the end, what I can advise is that socialising as a child shares the same complexities and nuances as your adult relationships today. The way I make friends now would all have worked 15 years ago; the difference now is that I have those skills, and through my own processes and learning, have found a way to tap into the magic of friendships.
Links
Reachout ASC have developed our Social Detective packs, based on teaching autistic and other children about how we cooperate and understand each other, how we listen to one another and how we learn to read social information to make the best guesses about what is going on. For more information or to order a pack go to https://reachoutasc.com/resources/social-skills-pack/
https://reachoutasc.com/wp-content/uploads/2024/12/Josh-and-friends.jpg1248936Lynn McCannhttps://reachoutasc.com/wp-content/uploads/2022/08/Logo-purple-tagline-300x97.jpgLynn McCann2024-12-09 13:58:302024-12-09 13:59:53My autistic experience of friendships