I've been reluctant to wade into the sea of behaviour debate I see in the news and on social media at the moment, but I would like to share some insights from my practice about how autistic students in secondary school use behaviour to communicate that something is wrong. I want to show you how we might go about supporting them so that the real issues are dealt with and behaviour improves.
I do think it is important in secondary classrooms for all students to behave in a manner that enables the lesson to continue and the content and learning to happen .It is necessary for schools to have a clear behaviour policy and a system of sanctions that are consistently used by all staff. This provides clear expectations and clarity of procedure.
However, in my many years of experience supporting autistic young people in secondary schools I have learned that negative behaviours always have a reason, and that we can mostly be sure that the autistic student is struggling to communicate what the problem is. They may get angry, obstinate, oppositional, withdrawn, self-harm or disruptive as a reaction to the frustration and stress of not being able to communicate and sort out a problem. Sometimes they cannot understand what the problem is they are having. Sometimes they are trying so hard to be good that the pressure causes them to have meltdown's, usually at home. We need to listen when parents tell us that - it's a great clue for us that the student is stressed at school.
The key is to find out what may be causing the behaviour and deal with the cause, not the symptoms. This is where adhering to a school policy of sanctions is at best non-effective, but it's usually worse – sanctions add to the stress and problems for the child and so the behaviour difficulties increase.
What to look for
These are the issues we have often uncovered when a child's behaviour seems to become a problem in secondary school (and especially when there are sudden changes in behaviour)
- 1.Outside factors – Lack of sleep is a big factor, as teenage sleep patterns are all over the place. However, many autistic young people have poor sleep patterns and may have done most of their lives. Lack of sleep on top of puberty and growing hormones can cause an autistic student to display extreme tiredness, anger and signs of depression which can impact on classroom behaviour. Sometimes it is family relationships or events that are the root of the distress they are displaying. A child may be experiencing bullying or abuse and be unable to communicate to someone about it, because they are autistic and cannot find the way to communicate, or because they are being threatened or manipulated to stay silent.
- 2.Bullying. Since working in secondary schools I never cease to be surprised at the levels of teasing and 'banter' between students. It can start as soon as they begin year 7. It can look like pack animals seeking out the weak and isolated prey. Any difference or simple 'mistake', social difference or physical feature seems to be pointed out and picked on. This is a symptom of our society and some would argue that it has always been part of school and growing up. But students with autism – with a social understanding difficulty are easy 'prey' and easily confused by all this 'banter'. Friendship groups change and establish clear boundaries, often leaving out and isolating autistic students. Those who had friends at primary school become confused when those friends find other friends and don't want to hang around with them any more. Being teased and not understanding the sarcasm or jokes directed at you can lead to a lot of stress. Autistic students are not stupid, they know when others are being cruel even if they don't understand the phrases and words they use. What they do understand is that people are picking on them and being unkind. Sometimes the other students are just doing the same as everyone else and don't mean to hurt the autistic student particularly. Sometimes there is misunderstandings. But these are important and real dilemmas for autistic students that can show in their classroom behaviours. I've known students who shout out, try to make jokes, do outrageous things to get the attention and approval of their peers. But then there are students who pretend to be friends with the autistic student and egg them on to be disruptive. Then they sit back and enjoy the autistic student getting into trouble. This cruelty happens too often. Schools who punish their behaviour without providing support to develop healthy friendships and recognise the early signs of bullying, are compounding the autistic student's isolation and anxiety.
- 3.Workload. The most academically able autistic students are vulnerable to workload stress when they go to secondary school. It's not that they are less able but often the pace, the switching attention between ideas, content and then the next lesson to another subject challenges them. Autism often means that the student is dealing with sensory overload, anxiety about getting things right, struggling to make sense of ambiguous instructions and organisational challenges on top of listening to the teacher, taking in the learning and understanding the expectations of the task. I am amazed at my students who tell me that this is how it is for them and yet their teachers don't realise because they seem to hold it together in class. One of my students told me that his hearing is so sensitive that he has to spend so much energy trying to ignore every scrape, sniff, cough, traffic sound and everything else he can hear, that concentrating on the lesson is really hard. He manages it but if someone next to him makes a loud noise or scrapes their chair on the floor he shouts at them in his shock and distress. And then it is him who gets told off (another assalt on his hypersensitive hearing).
- 4.Homework.For so many autistic students, homework is torture. For many the line between home and school is a clear one so to do school work at home doesn't make sense. My autistic students often tell me they don't understand the instructions, they can't hear clearly when writing them down or the teacher doesn't give enough time to do so, and when they get home they are so overloaded from the school day they have used up all their energy and cannot function to do homework. (See spoon theory – here). Many autistic students want to do well and work so hard to mask their difficulties but failing at homework regularly compounds stress and anxiety and can lead to oppositional or withdrawn behaviours.
- 5.Anxiety. Sensory issues cause a lot of anxiety along with worrying about friendships, tests, homework, being punished for getting something wrong and many other things that we often tell students not to worry about. However, worrying is so common in my autistic students that it is the first thing I investigate when behaviour is mentioned. I also investigate what they are worried about when they are seeming to be good and have it all together, because being autistic in a secondary school is not easy. Anxiety grows with puberty and often my students become much more anxious at the beginning of Year 10 when GCSE pressures really become an issue and the fear of not knowing what they might do when they leave school is added. Anxiety is not part of the autism diagnosis but I rarely meet an autistic teenager who isn't anxious. This is where I find Emotion Works a great resource to explore their anxieties and enable us to provide the right support that they need. Even anxiety about receiving sanctions can lead to disruptive behaviour – not because they want a sanction but because they are so worried that they will, they cannot concentrate, become angry easily and cannot cope in class.
All I am asking is that if an autistic student's behaviour is deteriorating, causing them to receive sanctions regularly, please do not assume the student is being difficult "on purpose". There is always a reason and most of the time there is anxiety, stress and a difficulty they cannot communicate in any other way. We can work with the student and parents to find out the root cause and then support that. Then we can meet their autism needs. It might be tempting to blame parents, too much screen time or puberty. In my experience, the root is nearly always something at school. We can do something about it if we understand what that may be. Even if it is something outside school, such as family break up for example, there is a lot we can do to make things less stressful at school and support the student to calmer behaviour. I can't give you an extensive list of what to do because every child will need a different solution. But here are some examples.
So what do we do?
Child A in Year 10 who had previously behaved well, started to walk around the school in the opposite direction to the one way system, and shouting at teachers who reprimanded them. The school discipline policy was implemented every time they did and they were given school time detentions after a number of warnings. They didn't attend the detentions and this was flagged up by the senior leadership team and was referred to the SEND department for investigation. Their parents were called in for a meeting. At this point, I was asked to work with them for a session and found out that at the root of the behaviour was an issue the student had become very upset about and felt that no-one was listening. It also transpired that they didn't go to detentions because they had no idea what a detention was and what they would do at the detention. They thought they would be kept at school all night and not be allowed home at all.
Once we understood, we could help this autistic student. We looked at the issue they were upset about, mapping out all the information they could tell me about it. I was able to add some information to the mind map to show them why the teacher had made the decision they didn't like, and that they could still benefit from the course of action that they were now having to take. Secondly, we discussed the school behaviour policy and they agreed that it was fair to receive a sanction for deliberately breaking the rules. All we had to do was write a social story to explain this and what would happen in a detention, how long they would have to be there for, and when it would finish. They agreed to do one detention (supported by the staff) and then the matter would be finished. The student also requested a report card (usually used for behaviour monitoring) so that they could monitor each lesson. This card had positive targets for them to achieve and included the support they could ask for in lessons. This was very successful and helped the student and the teachers to establish a very consistent approach. The student behaved in the way they did because they were confused, upset and angry. The support we put in place explained things properly and made a plan they could accept and carry out. No further sanctions were needed.
Child B was in tops sets and seemed to cope well at the beginning of Year 7. However, after the Easter break they became oppositional in some lessons and started to run away from school. Every time a teacher tried to implement a sanction from the school behaviour policy they would complain loudly and argue with them, occasionally throwing something across the room in the direction of a teacher. They had a 'time out' card which worked in some lessons, but some teachers refused to let them use it. They were often late to class, spent lessons with their head on the desk and missed more and more of their learning. Homework wasn't completed and parents reported that they were having meltdowns after school most nights. At first the school implemented its behaviour policies and sanctioned the student with detentions, but that is when they started to abscond from school. When we investigated what was worrying the student we found out that because they were bright, it had been assumed they would be fine in secondary school.In reality, they were struggling with the more abstract content in some lessons, particularly English. They had significant sensory needs which they'd managed to mask in primary school, but was now struggling to manage in the noisy, busy corridors and break times at secondary school. This student was trying to function with an extremely high level of anxiety each day and their meltdowns at home were a symptom of their distress and inability to cope.
With parents, we arranged a reduced timetable of one subject for a term, which would then be reviewed. They were taken out of two assemblies and one lesson a week and this time was spent with a TA to go over their workload, homework and explain anything they were unsure of. The SENCO and student put together a one page profile to give to all their teachers which reminded them of his autism and the support that would help him in class. They were reminded to make sure they could use their time out card and to explain things in smaller chunks to the student, checking that they understood.
Secondary schools have fewer TAs and tight budgets but understanding the behaviour and communication of autistic students is vital. There are more complex students than these examples, but Emma and I have spent many years working with secondary schools to support complex needs and seen students get through each school year and be supported in the challenges they face. Occasionally we have supported a move to a more specialist autism provision for the sake of the student, and at other times we have prevented exclusions. You may need outside help, but listening to the student, acting upon their concerns and supporting their needs is achievable in most cases.
This year we supported with our schools a number of students doing their GCSEs. The schools (especially led by the SEND departments) have adapted and supported the students from their shaky early years in year 7 and 8, through the puberty issues and relationships challenges and been there for them when things have got tough and stressful. There is nothing better than seeing those students sit their GCSEs and knowing you have enabled them to survive and even sometimes thrive because you didn't see behaviour as something to punish but as a call for help that you could answer.
I'm not saying it is easy. I work with schools who put so much effort into supporting their autistic students and keep them going through the times that their behaviour shows us that they are not coping or trying to deal with a problem or worry. These schools read the behaviour as communication and try to 'listen' to what the student is communicating. Sometimes it can be dealt with quickly, other times it can be a continuous support package throughout the whole of secondary school. This post is an attempt to share that and show the necessity and positives of being flexible when 'reading' behaviour in autistic students.